Hugh Claus Memorial run 2021

Hugh Claus Memorial run 2021

September, 2021

basketball courts on 24th st in South Seaside park, NJ, Seaside PArk, New Jersey

About This Festival

5k walk/run to raise money for Amyloidosis Research and awareness
$25.00 for the run
$15.00 for the walk
$15.00 for the 1 mile fun run
My father Hugh Claus passed away in 2013 from a rare disease called Amyloidosis. Since I have joined the board of the Chip Miller Amyloidosis foundation to raise money for research and to spread awareness.

Each year 3000 cases of amyloidosis are diagnosed in the United States. Amyloidosis is generally a disease of middle-aged people and older, although the disease has been seen in individuals in their thirties. Men are more likely to be affected than women by a ratio of about 1.5:1.
With early diagnosis, the outlook for patients with amyloidosis has shifted to hopeful in the last decade. The early diagnosis allows treatment to begin before the amyloid protein build-up in the body becomes too great to overcome. Without treatment, the outlook for patients with AL amyloidosis is not good, many passing away within 18 – 24 months after diagnosis. Early diagnosis is the key to managing the disease.
Funds raised at events like ours, help researchers in their development of new ways to diagnose and treat this dreaded disease.